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Medically reviewed This article has been reviewed by one of Sidekick’s medical doctors.

Navigating Life with Ulcerative Colitis: Your Guide to Essential Patient Advocacy Groups

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At Sidekick, we understand the challenges of living with Ulcerative Colitis and the importance of having a robust support system. That’s why we’ve curated a list of dedicated patient advocacy groups that provide valuable resources, community support, and advocacy for those living with Ulcerative Colitis. 

These organizations work tirelessly to improve the quality of life for patients and their families, offering everything from education and support groups to advocacy and awareness campaigns. Explore the following groups to find the support you need on your journey.

Crohn’s & Colitis Foundation (CCF)

The Crohn’s & Colitis Foundation (CCF) is a leading organization dedicated to finding cures for Crohn’s disease and Ulcerative Colitis. They offer extensive educational resources, support groups, and research initiatives to improve patient care and treatment options.

United Ostomy Associations of America (UOAA)

The UOAA provides support, advocacy, and education to individuals living with an ostomy. They offer resources to help patients navigate life post-surgery, including local support groups, educational materials, and advocacy efforts to improve healthcare policies.

IBD Support Foundation

The IBD Support Foundation focuses on providing comprehensive support services for individuals with Inflammatory Bowel Disease (IBD). Their programs include patient education, emotional support, and assistance in managing the daily challenges of living with IBD.

Girls With Guts

Girls With Guts is dedicated to empowering women with IBD and ostomies. They provide a safe and supportive community where women can share their experiences, access educational resources, and participate in events that foster connection and empowerment.

Gut It Out Foundation

Founded by former MLB player Jake Diekman, the Gut It Out Foundation aims to support those with IBD through education, awareness, and fundraising for research. They focus on fostering a supportive community and improving the quality of life for IBD patients.

Connecting to Cure Crohn’s & Colitis

The Connecting to Cure Crohn’s & Colitis organization is dedicated to raising awareness and funding research for Crohn’s and Colitis. They organize events and programs to connect patients, families, and caregivers, providing a network of support and advocacy for better treatments and a cure.

International Ostomy Association

The International Ostomy Association offers global support for ostomy patients. They provide information, advocacy, and support services to improve the quality of life for people living with an ostomy, promoting acceptance and integration into society.

The Great Bowel Movement

The Great Bowel Movement aims to empower those with IBD by raising awareness and fostering a positive outlook. They provide educational resources, advocacy, and a platform for patients to share their stories and spread awareness about living with IBD.

CCYAN (Crohn's and Colitis Young Adults Network)

CCYAN focuses on connecting young adults affected by Crohn’s and Colitis. They provide peer support, educational resources, and community-building activities designed to address the unique challenges faced by young adults with IBD.

IBD Moms

IBD Moms is a community for mothers living with IBD, offering support and resources to navigate the challenges of motherhood while managing their condition. They provide a platform for sharing experiences, advice, and emotional support among IBD moms.

Gutless & Glamorous

Gutless & Glamorous aims to inspire and empower individuals living with IBD and ostomies. They focus on raising awareness and promoting a positive image of those with these conditions through advocacy, education, and community support.

Color of Crohn's & Chronic Illness

The Color of Crohn’s & Chronic Illness organization is dedicated to addressing the disparities faced by people of color with IBD and chronic illnesses. They provide advocacy, education, and support to ensure equitable healthcare and improve the quality of life for their community.

At Sidekick, we believe in the power of community and the importance of support. These organizations are invaluable allies in managing life with Ulcerative Colitis, providing the resources and connections necessary to thrive. Explore these groups to find the support and community that can make a difference in your journey.

If you’re living with Ulcerative Colitis and looking for tailored support, consider joining the Sidekick program. Our dedicated team of health professionals is ready to guide you through each step of your journey with UC, helping you to manage your symptoms and enhance your quality of life. Visit our website to learn more and sign up today: Sidekick Therapeutics.

About the author

Serene Touma

Editor of Living Well